November 28, 2022

kathleengkane

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Dominic Update 4.0 – Brown Eyed Baker

Hi everybody! I can’t believe that we are on the cusp of Labor Working day and summer time coming to a near. The last 5 to 6 months have been a whole blur and this summer, in certain, has flown by. There is been hospitals (chemo, stem cell harvest, surgical treatment), clinic appointments, and driving back and forth to New York.

But, just one foot in front of the other and one working day at a time, we are grateful to be heading into a new year with a solid boy and hearts entire of hope.

Dominic experienced a fast paced first handful of months of August…

🔍 To start with, he had a new established of scans (MRI + MIBG) as well as another bone marrow biopsy. The scans still demonstrate disorder in the course of his bones but most of the places are “dimmer” than before, and the bone marrow involvement lowered by more than 50%.

So, there is nevertheless function to do, but there is an enhancement. And! Dominic did equally of the scans without anesthesia (he has been sedated previously since you have to lay completely continue to and the MIBG is over 2 several hours). He’s a rock star.

🏥 Upcoming, he had his to start with spherical of immunotherapy. The antibody he’s supplied targets the protein of neuroblastoma cells and considering the fact that they typically sit on nerve cells, there is considerable nerve ache accompanying the cure. The infusion is limited (45 minutes) but powerful.

There is a ton of pre-medicine and suffering management during and following, and he would basically sleep the overall relaxation of the working day afterward. But, the treatment plans are outpatient so no hospital stays, and they really don’t affect counts like chemotherapy, so no neutropenia or blood or platelet transfusions.

🦸‍♂️ Then, he crossed off one more major hurdle… radiation. He did this awake with no anesthesia as well… twice a working day for five days, he was strapped down working with a distinctive mask that was molded to his head and upper entire body to retain his head and neck in the exact very same posture just about every time (his clavicle was radiated because of to the cluster of diseased lymph nodes that were being there, as very well as the tumor bed in his stomach). An awesome woman who performs there has the children select what they want their masks to be and then custom paints them… Dominic selected Iron Person. There are some exceptionally particular people today in this earth.

He could also pick whatever audio he wanted to be piped in each individual time and selected Christmas tunes every day 💕🌲 He absolutely rocked it and the persons functioning there had been completely phenomenal.

➡️ Next… we get to be dwelling for a pair of weeks, then it’s again to NY for another spherical of immunotherapy, a new set of scans, and a different bone marrow biopsy. 

📘 In the meantime, he begun kindergarten this 7 days! He’ll be joining course just about till his oncologist gives him the go-ahead to show up at in individual, which we’re hoping will be late September.

💈 His eyebrows, eyelashes, AND hair have all started growing again! He’s had a ton of electrical power, has attained again all of the pounds he lost soon after surgery and that final round of chemo and is usually doing actually, definitely very well.

❤️ Thank you all for your continued prayers, it means so considerably to our family.


In other news, I am planning to get some e-mails scheduled out heading into the slide and getaway season to refresh some web site written content. So, you can search ahead to me popping into your inbox additional frequently in the coming months 🎉